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Joint Statement on Medication Safety During Treatment of COVID-19 in Utah
PRESS RELEASE
FOR IMMEDIATE RELEASE
April 27, 2020
The
Those of you who regularly help our wards will undoubtedly recognize in the photo our longtime patient, volunteer and great friend of the foundation. You have helped Yulia more than once in purchasing the drug "Forsteo" - the only remedy that helps against the constant loss of calcium.
You can read Yulia's story here: THE STORY OF YULIA ZAIKINA Type 1 polyendocrine syndrome, which both Yulia and her twin sister suffer from, is not treated in Russia. If you describe Julia's condition in your own words, you get the following picture: constant lack of calcium, suppression of adrenal function, persistent fungal infection of the mucous membranes, hair and teeth loss, convulsions from which there is no salvation, constant pain ... Julia has been living with this “bouquet” for 30 years. Over the years that have passed since the diagnosis was made, Yulia learned everything about her disease. She can hold discussions with doctors, writes letters to the Ministry of Health, which from year to year denies her a free receipt of the only drug that can relieve convulsions - "Forsteo".
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STOCKTON, Calif., November 9, 2019
Julia is a very stubborn person. Realizing that she would not be able to help her in her native Chita, after graduating from the institute, Julia moved to Moscow - alone, without the help of her mother and friends, she was able to get a job, rent a room, regularly undergo examinations and hospitalizations at the Scientific Center of Endocrinology.
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PRESS RELEASE: DOH Releases New Pharmacy State-Wide Standing Order for Naloxone
December 9th, legal drug that can reverse
an heroin and prescription opioid overdoses by blocking the effects of
opiates on the brain and restoring breathing in minutes.
During the 2016 prescription drug order to dispense
naloxone.
Julia never refuses to help the fund - she is a wonderful photographer who is ready to come at any time and help with the organization of the fund's events, participate as a volunteer in our activities, and help us with documents. But now Yulia herself needs our help.
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For previous meeting minutes you can see the DOPL website.
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New problems appear every year. Over the past two years, I have had to reduce the amount of the drug that I inject myself subcutaneously. Because of this, my jaw bones became mobile, the periosteum "floated", my teeth began to wobble and literally "on parole". I'm not even talking about appearance - but how can I chew if I lose my teeth? Poorly chewed food will lead to serious disruptions in the functioning of the stomach and intestines, and I can no longer bear this condition ...
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Dental prosthetics is not as easy as it might seem. The matter is aggravated by the fact that with the number of diagnoses that Yulia has, not every doctor will undertake prosthetics. In one clinic, she was asked to remove all her teeth at once in order to "put a temporary bridge and solve the problem at least this way." But what will happen after the installation of the temporary bridge, the doctor did not say ... 